When He Speaks

I’ve wrestled with this post for a while.  I’ve gone back and forth and back and forth searching for all the right words to even slightly express my heart and my whirlwind of thoughts.  Amon has been the kiddo who has thrown our hearts for the biggest loops.  He’s had a big life for an almost-two-year-old.  He’s had some big struggles and has had to fight hard.  He’s kind of amazing.  Holding his sweet little baby self in Ethiopia and knowing something was very wrong and then fighting hard to get him to the U.S. as quickly as possible and then stepping onto each plane back to the U.S. with that oxygen machine was incredibly hard and nerve wracking to the max.  And no matter how lost I felt, no matter how incapable or unequipped or unworthy I felt to even be a piece of his story, God was right there…sustaining, holding firm, encouraging and reminding me of how He holds time and all our plans in His hands.  He knew the journey we’d take with Amon.  He knew how Amon would change our hearts and aid in our healing process.  He knew Amon would change us in the most unimaginable way ever.  He knew Amon would show all 5 of us joy again.  And we made it.  We made it home and we made it to all the doctors appointments and we made it through open heart surgery and an almost month long stay at the hospital and we made it through being homebound for so long and we made it through the adjustment of going from a family of 5 to 6.  We made it.  And I’m so proud that we did.  I’m so proud of Amon and his fight.  I’m proud and thankful beyond thankful he is a survivor.  I do not take that lightly.  I know we are blessed.  And I don’t know why we were blessed in this way because I know so many other families have very different stories and it’s crushing to my heart…I can only imagine…only only imagine.

His struggles continued with his hearing and his development.  But God worked a miracle in his little ear…I truly believe that with every ounce of myself.  I tend not to believe in miracles much anymore or at least play the role of skeptic all too well and it’s a shame because I know in my spirit God is totally in the business of healing and redemption and restoration and renewing and who am I to doubt the power of the creator of the world.  And He gave Amon hearing in his little ear.  I believe it.  And we marched on with developmental delays with his speech and communication and autism testing and early intervention.  Lots and lots of doctors appointments and evaluations.  We voiced our concerns and our pediatrician who deserves one of those “world’s greatest” mugs has guided us all along the way.  He has been right there helping us understand and giving us his professional opinion and helping us maneuver through each possibility.  He’s been the best and helped us navigate all the referrals and all the “next step”s.  Here’s the deal:  Amon just doesn’t talk much.  He tries.  He really really tries.  And he’s been in early intervention for a while now.  He has one-on-one speech therapy every week and I love his therapist.  He has lots of signs for a kid his age.  Please, Thank you, Help, Book, Open, Close, Ball, Milk, Eat, More, Sorry, Bubbles, Sleep and he even has personal signs for Josh, Harper, Hudson and Solomon.  When I was in Africa he said Daddy and I thought I was going to cry a river knowing he had a new word.  Up until this moment Momma was his only verbal word.  And then shortly after he added “no” to the mix and we all went crazy.  Cheering, laughing, praising…we were a bunch of yahoos…all 5 of us.  I’m sure Amon thought we were nut jobs.  I thought to myself, “Here we go.  He’s going to take off.  This is what we’ve been working so hard for.  This is what Amon has been working so hard for.”  And then the words stopped.

He is making progress and he will mimic more than before, but sometimes I sit there feeling so defeated…doubting he’ll ever really talk.  I do.  I doubt.  And I look at him in all his crazy sweetness and at how hard he works and I just gush and cry about how blessed we are.  And God whispers again and again the reminder that He holds it all and nothing surprises Him.  Amon is His child…not ours…just like Harper, Hudson and Solomon are all His as well.  Josh and I have been entrusted for but a brief time to care for these gifts…these jewels…these exquisite pieces of God’s handy work.  And He allows hope to drip back in and fill up my heart as quickly as it leaked out.

He had a recent developmental evaluation and we’ve been referred for a speech eval to help rule out some things like a type of stroke that specifically affects speech and to maybe give group therapy a try and see if he picks up a little more in a group setting.  I would love for him to try music therapy because he loves music and will hum and try to sing things like happy birthday and the alphabet song.  We pray for his heart and his little mind and for the words to come.  And right when Josh and I give each other this deep, long defeated stare Amon does something amazing like mimic the word please.  And we lose our minds like all proud parents would.

The other day he mimicked “thank you” as he signed it and I sobbed.  It was the first time he put two words together.  I called Josh at work…no answer…so I text him and he called me back shortly after and we just sat on the phone together in awe.  I even got Amon to say it again over the phone for Josh.  It was emotional.  It was the hope we needed.  It was God giving us the hope we needed.  A glimpse and a reminder of His goodness.

And then I remember like the fool I am that His goodness is always there.  It wasn’t solely wrapped up in the words “thank you”.  It was already there and and it never leaves.  It’s never ending.  His goodness is everywhere…wrapped and entwined through out our entire existence.  He is good.  And even though I beg and pray to God to allow Amon’s heart to stay strong and to allow him to speak and communicate…even if something happens with his heart or Amon maxes his words out at Momma, Daddy and No, God will still be good.  He knows our plans all too well and He knows what’s best.  Everything filters through Him.  And what Satan meant for harm or to discourage or to defeat us, God meant for good.

So you’ll find us celebrating every little milestone in Amon’s journey.  We’ll be the ones cheering and hooping and hollering over every new sign or word.  We’ll be the proud parents beaming with pride as we watch Amon work so amazingly hard and try his little best.  We’ll be the ones who will tell you every single time no matter how encouraged or discouraged we feel that day, how blessed and honored we are to be his parents…to be the parents of all 4 of these wildly wonderful Kelley kids.  Yes.  That will be us because God’s goodness permeates every stitch of our family and doesn’t run out in the good times, but sustains and uplifts even in the trenches.

**Disclaimer:  Amon has many, many, many outside factors thrown in his little mix that are very different from other kids his age.  Our pediatrician has guided us through out our entire journey with Amon and we have looked to him for advice and expertise.  I share this post in hopes of encouraging others who may feel down in the trenches or defeated at times.**

The Cast Houdini

Well, he was just getting use to his cast.  He was actually starting to use his right hand a little again.  He was even sleeping through the night.  When he broke his arm on Wednesday he did not sleep good Wednesday, Thursday and Friday.  Finally on Saturday night he slept like his regular little good sleeper self again.

And then yesterday happened.  I always thought Huddy and Sol were pretty crazy.  Like the hilarious, funny, wild, little boy crazy.  Huddy once got his head stuck under Harper’s bed as a toddler and had a pretty consistent streak of getting in our cabinets and dumping out bags of food like chips and animal crackers.  But Amon…oh Amon…he takes the prize.  Easily.  He loves our toilets and climbing on everything and getting into everything and breaking…ummmm…almost everything.  And yesterday he managed to take his own cast off.  Yep.  There sat his red cast with some doodled hearts on it.  I couldn’t believe it.

How in the world you ask?  I have no idea.  All I know is Sol said, “Mom, Amon just took his cast off and threw it on the floor.”  And there it sat.  He’s a tricky guy, this Amon fellow.  Yes he is.  So I called the doctor’s office, let them in on the craziness of our child and then waited for them to call back.  Amon took a nap.  Broken right arm neatly resting on Simba.

Just a little later we were headed back to the hospital to get him re-casted.  The dude who put his first cast on also did his second cast.  When we walked in he just laughed.  They put him in a full arm…up to his little shoulder…new cast.  As the dude was putting the new one on he said, “He won’t be getting out of this one.”  I tend to believe him this time.

What’s super funny is just a few nights before we busted him on our kitchen table with a pair of kid scissors trying to cut his cast.  I had completely forgotten about it until I ran across the picture last night.

I suppose we should have taken him a bit more seriously.  #irony

Happy Tuesday.

Being On The Other Side

Saturday we participated in the American Heart Association’s Nashville Heart Walk.  I was surprised at how emotional I was.  I knew it was a big day…a day we had pushed to raise funds for…a day in which you guys helped raise funds for research…a day which held such deep importance to our family and Amon…a day which held a memory that will forever be in my mind and heart.

Last year I literally watched out Amon’s hospital room window as people walked to and from the heart walk.  I remember how badly I wanted to be out of the hospital…how badly I wanted Amon to be okay and ready to go home…how badly, so so badly I just wanted my mom.  And there we were, one year later, together as a family of 6 walking, participating and remembering together that Amon is a survivor.

I found myself tearing up at every corner.  Harper writing on the tribute wall…a big heart with Amon’s name in the middle.

Checking Amon into the survivor tent and realizing for the first time…he’s a survivor.  Watching the kids play in all the bounce houses and watching Amon eat banana after banana after banana.

Searching with Harper for the poster tent just so she could make an Ace of Hearts poster.

Watching Harper, Huddy and Sol fill out their tribute tags.

Mr. Kelley…Josh’s dad…Amon’s Big Daddy…Amon’s most favorite person in the world other than Josh, being there to support us and Amon…to celebrate with us.

Walking with my brother Chris, my sister-in-law Kim and my niece and nephews.  Walking with others who have traveled a similar road, but with our own stories and outcomes.  Walking with people who understand.  Receiving a hug from Courtney…her knowing how important this day was to our family.  Receiving a tight hug from Rebecca…a mom whose little boy has had multiple heart surgeries…knowing she understands my heart and how important research is.

Having those conversations where I realized Harper understands what this is about…how Amon will have to have another surgery, but maybe, just maybe, because of the money which was so generously given, when Amon needs the surgery they won’t have to cut him open next time.  Harper doesn’t want him to have two scars.

My sunglasses hid my tears well.  I had a hard time saying certain words, spelling Amon’s name to Huddy and Sol, giving hugs, watching all the people around us…hearing their words, reading their shirts, everything.  When we finally got home and the walk was through we sat with Amon.  He was tired and deliriously cute.  We soaked him up.

It was a really emotional day..being on the other side of a year ago and my heart was reminded of how people and families can travel similar roads, but come out in very different places.  How the outcome was not always what was prayed for or long for or desired.  How Amon is still here with us and so many others are not.  My heart is overwhelmed for those families.  I have so many questions for God, but He reminded me yet again of how blessed we are…how what an honor it is to be Amon’s mom, to watch his life unfold and how humbled I am to be a small part of it.  I have no idea why we are so blessed with this child…no clue…but I am incredibly and deeply thankful.

Thank you!  Thank you for giving to help further heart research.  Thank you for being kind and thoughtful and generous and loving.  With the deepest sincerity, thank you for giving in honor of Amon.  We far exceeded our goal because of you.  Just thank you…truly, truly, truly…thank you.

Heart Walk

This Saturday we will be joining local Nashvillians for Nashville’s Heart Walk.  This is to support the American Heart Association and heart research.  Last year Amon was still in the hospital recovering from his open heart surgery and we were unable to attend.  So this year was a no brainer…we are in!

We’ve been raising money for heart research and hit our goal of $5K…which is amazing…and we feel so humbled and honored and thankful to everyone who helped get us to our goal.  It makes me weepy.  We are currently at $5,755 and would love to hit $6K before Saturday.  If you wanted to donate, there’s still time.  You can make a donation on Amon’s personal fundraising page HERE.

If you make a donation of $15 or more, as a thank you, I will mail you a sweet key fob.  After you donate just send me a message HERE and let me know your mailing address.

It is so bizarre looking back at how far God has brought Amon.  Amazing.  And I know we owe big thanks to heart research…for how far things have come, but there is still so much left to do and discover and to help prevent.  Amon will need another surgery eventually…around age 10, if not before…so research is vital…it’s important…and we can help.

So if you feel inclined to donate or come walk with us this Saturday, that would be awesome and thank you!  Amon is doing beyond well…a wildly energetic and sweet kiddo.  Everyday I thank God for his life.

Happy Monday!

Josh Kelley & Amon

This weekend we celebrated both Amon’s 1 year heart day and Josh’s birthday.  There were strings of hearts and happy birthday banners.  There were heart cookies and mini red velvet cheesecakes with homemade whipped cream.  There were sweets for breakfast and Mexican food for lunch and more sweets after that.  There was time together with our tribe of 6.  There were movie nights and Josh getting to sleep in and do yard work…it’s his thing…he likes it…I don’t get it.  There were cards and presents, one of which was a Millennium Falcon tshirt Huddy and Sol picked out for him.  Yes.  It was a really sweet time.

Last year we celebrated Josh’s birthday in the hospital.  Amon had his open heart surgery the previous day before, so there actually wasn’t much celebrating going on.  More like anxious, nervous, on pins and needles…a semi crying irrational mess.  That sounds like the ideal birthday right?  Yep.  I felt terrible…it was the combination of the worst/best/most memorable birthday ever.  So this year was nice.  A drastic change from last year and it made me very weepy with how far we’ve come…how far God has brought Amon and our family…how He has worked and moved and just amazed us.  I am very grateful for Josh Kelley and all these little humans we have been entrusted with…and this weekend we were all thinking heavily about Amon and his heart and the crazy good guy Josh Kelley is.

Laura Kelley Fun Fact #13  Since the time when we first met as kids I always referred to Josh as Josh Kelley.  All his baseball friends called him JK and it’s so fun to hear those same guys still call him that even today.  I love it.  It contains memories which I am so in love with.  For some reason, I just always referred to him as Josh Kelley.  When we started dating at 15, slowly but surely the “Josh Kelley” went to just “Josh” except for every now and then and when I write, it always come out as Josh Kelley again and it makes me smile because the boy who comes to mind when I say those two names together is the guy I fell crazy in love with.  He’s much radder now though.  I love him more than I ever thought I could.  I even like him too…most of the time.

This gig as wife and mom I have the privilege of doing is not always easy, but it is full to the brim of love and laughter and grace and mercy and forgiveness.  It can be madness.  There are days when I want to run far, far away, but these people…these faces…Oh my word.  This weekend He reminded me of how crazy, insanely blessed I am…that we are…to have each other and to be loved by our Savior.  It’s completely overwhelming in the most stellar way.

Happy Birthday Josh Kelley and Happy Heart Day Amon!  You two, are quite the pair!

“If I Can Just Make It Through Friday”

That was my slogan this week.  So many things to get done.  So many deadlines.  So many things to accomplish and Friday was my big day.  If I can just make it through Friday.  And I did.  And I’m happy the week is done.  And now I’m sitting on our couch absolutely exhausted and ready for bed at 7:22.  Oh and I’m working on my new computer which is very exciting and semi paying attention to GI Joe.

Tomorrow is the 1-year-anniversary of Amon’s open heart surgery.  It’s a big important day for our family.  It makes me really weepy because the transformation that occurred in Amon was absolutely crazy amazing.  God has just been so good to us.  The time while Amon was in the hospital was definitely one of the hardest things our family has ever done. The people in our life who stepped in and really helped us out made a very hard time a bit easier.  I made lots of cookies this week to deliver today and tomorrow as a small way to say thank you.  I wanted these special people to know we didn’t forget the ways they supported us.  I wanted to say ‘thank you’ again.

You guys have helped us rock Amon’s heart fundraiser.  We still have two weeks to raise money and right now we have raised $5,600.  THANK YOU!!!!  If you haven’t donated and wanted to, there’s still time and if you make a donation of $15 or more I’ll mail you a ‘thank you’ key fob.  I’ll make key fobs until I’m blue in the face when the money is going to heart research.  Absolutely.  You can donate HERE on our personal fundraising page.  Then don’t forget to CLICK HERE and send me your mailing address.

And I also had to finish Ms. Flower’s silent auction basket for Harper’s class.  All you locals…here’s a chance to snag some art for a great price and all the money stays in Harper’s school.  There will be a set of 5 key fobs up for grabs as well as an individual piece of art too.  Then there will be class baskets…Ms. Flower’s is full of these:

4×12 “Where you invest your love, you invest your life.”

9×12 “Let me be singing when the evening comes.”

8×10 “Where there is love, there is hope.”

11×14 “Nothing more beautiful and true than the love we’ve found in you.”

DISCLAIMER:  I do make mistakes…all the time…this picture was taken before the fix.  This is what happens when you work with 3 little wild boys in tow.

12×12 “I feel that there is nothing more truly artistic than to love people.”

There will be lots of different baskets at the silent auction along with games and prizes and food.  It’s Pioneerfest yo and it’s one of Madison Creek’s biggest fundraisers.  So come out next Saturday and bid.

Happy this week is done.  Happy to have finished up some big projects.  Happy tomorrow is Saturday…and I’m sleeping in.

Happy Weekend!

4th Childness

He keeps us on our toes.  He is by far the most active/happiest/most laid back baby toddler we’ve had yet.  And that says a lot because we were blessed with some easy small baby Kelleys.  Amon wins the award though.  How can a child be insanely active…in the toilet, in the cabinets, into everything and yet falling asleep under the table or in his chair or ummmm, pretty much anywhere else.

He’s the master at being that 4th laid back kid.  You know the one.

The entertainer.  He makes us all laugh and swoon and all 5 us are just smitten and gaga over this kid.  We think he’s the best thing since sliced bread and we have no shame…he’s baby Kelley…the littlest of them all.  And throw in his rad heart and scar and I’m afraid we have no chance.

Josh and I try to run a pretty tight ship around our house.  We really try and put the hard work into parenting.  When our kids are grown we want them to all be good adult human beings…kind, loving, generous, compassionate and respectful.  We want them to love Jesus and honestly, we’re trying not to raise kids who are bratty, disrespectful and feel entitled.  We want kids who care.  Not what you’re shooting for as a parent?  No worries, different strokes for different folks, but all these things are important to us.

I tell Josh all the time, if Amon turns out to be spoiled rotten there are so many people to blame besides ourselves and #1 on that list will be his siblings…Harper being the absolute worst 🙂  She is head-over-heels…crazy in love with this boy.  It’s quite ridiculous in the sweetest and best way.  When he cries…when he pitches a fit…Harper is his listening ear.  She’s definitely our weakest link 🙂

And believe it or not, he does have a routine.  He eats and naps everyday around the same time, goes to bed at 7pm every night.  A good sleeper.  A good eater.  He’s just good.  And he makes you feel good too.  He likes to cuddle and give pats on the back.  And he’s funny as all get out.  And he’s super crazy.  C to the RAZY.

I have been thinking about his roll in our family as the 4th kid.  And what he has meant to all of us so far.  How God has used him to bring back hope and lace all our faces with smiles again.  He’s been the best medicine.  God used Amon to aid in healing our hearts.  We’re still on the mend, but how far we have come.

So what about you guys…you have any 4th kiddos out there who take the cake…who entertain your entire family…who everyone just adores?  Any advice on parenting them in the best way?  You have my ear.  We want all our kids to be good humans…1,2,3 and 4.

Happy Wednesday!

Peace Out

Today I’m planning on chilling out.  Like Fresh Prince of Bel-Air style.  We have a pretty not-very-exciting day planned, minus one doctor’s appointment today due to a mishap that involved a rope lowering a storm trooper over our stair railing and someone slipping on our floors in their socks.  It was a total fluke.  But I digress.

So my game plan for the day…get our chill on…make cookies…we’re totally having pizza for dinner and not the kind that takes any amount of work, but instead the kind that’s $5 and already cooked and waiting for you at Little Caesers…God bless Little Caesers.  I’m making all little Kelley boys take a nap so I can get my create on…I’m going to eat said cookies we are going to make…I talk a lot about eating sweets on here don’t I…geesh.  Let’s see.  I think we’ll watch a movie…maybe go fishing.  Play the lottery…I bet Huddy would pick winning numbers…I kid.  Kind of.  I digress, again.

You get it…today is one for a whole lot of good nothingness.  My mind is zonked.  I tried to think of a cool or fun or enlightening post for today and I came up completely empty headed.  I’m done for the week…and that’s just how I’m rollin’.  So I leave you with this Friday Fun Fact…a list of things Amon has put in our toilet since Huddy stood on the top of it to try and reach his toothpaste and cracked the top of the toilet seat in half and the repercussion is there has been no lid to close keeping Amon from the watery goodness he so loves and apparently none of us…not myself, Josh, Harper, Huddy or Sol can remember to close the bathroom door and therefore when you realize Amon is quiet, turns out he’s either A) sticking anything and everything in the toilet or B) asleep under the kitchen table.  Without further ado…

-His hands.  I may have even watched in horror as he licked them one time after doing so.  Not a proud mom moment.  I was overwhelmed with mortification and then feeling really sorry for this 4th child.

-His large stuffed Simba lion.

-$22 Bare Minerals make-up brush.  Busted him swirling that baby around in 2 Kelley boys morning urine.  Did you just throw up a bit?  I tossed it and upon checking out at Ulta with my new one I learned it was a twenty-two flippin’ dollar brush.  Who knew.  Clearly not me.

-Toilet paper roll.

-Bath toys.

-Bristle blocks.

-Spoon.

-My hairbrush.  Which again with the morning urine.  I need to teach my boys how to flush.

-And a mini M&M tube.

He did some serious toilet dunking in a short amount of no-toilet-lid time.  Don’t be fooled by his adorable face…he takes mischief to a whole new level.

And I’m peacing out.  See you guys Monday.  Enjoy the long weekend.

Happy Friday.