Well I thought we would maybe be going home sometime really soon and I have now decided that when you enter the hospital your main game plan should definitely be “Expect the Unexpected”…which I think might also be a line for the reality TV show Survivor…I think. Anyways…So Amon is going to be in the hospital quite a bit longer…like close to an additional 10 days…yep. He’s having some more issues that aren’t really so tiny anymore, but all the doctors are quite confident he’s going to be just fine…it will just take some time.
The suck part of this is he cannot eat for 7 of those days…today was his first full day with no food. This makes for a very pissed off baby for the majority of the day. My go-to “try-not-to-think-about-how-ticked-you-are-right-now-because-you-want-to-eat” move is hitting his balloons down in his face. He loves it, so I stand for far too long hitting balloons during the day.
And eventually he falls asleep for a bit and we start all over when he wakes back up.
I can also do a bit of distracting by sitting him up in my lap. This doesn’t always work for a really long time, but definitely a good change from just laying in the bed. Poor guy…the back of his head is now bald…like bald, bald. Definitely no match for the front…it’s still fabulous.
So that was the really hard part of our day…but I am so thankful all these hang-ups are happening at the hospital instead of at home. And I am really thankful for such thorough doctors who caught a very serious problem in time to fix it. So thankful for Amon and his incredibly sweet heart and his crazy awesomeness and this journey we are on. I may also be thankful for cable TV.
We had lots of fun visitors today, but my favorite part of the day was taking Amon for a walk with Courtney. Our sweet nurse helped us become portable and we set out for a little walk. Amon really seemed to enjoy it and didn’t fuss one bit. He had not had anything to eat in over 30 hours at this point…6 more days to go. He’s a little something Courtney likes to call “hangry”…he’s hungry and angry. The walk totally did him some good. And we got to get some fresh air as well. The weather was amazing.
Some more musicians came by last night and sang The Beatles “Here Comes The Sun”…a cappella…it was beautiful, but I’ve decided it was also a terrible selection to sing for parents. I cried my eyes out…I’m not proud…it may have gotten pretty ugly.
And since nights around here just got a little more complicated with a very hangry little boy, I was able to do a little more art last night since I was up for quite some time. This 8×10 canvas is for a very dear, sweet woman in my life. She’s amazing. Mumford & Sons is just the gift that keeps on giving right now. It’s true love.
The big wee Kelleys have been living it up while our hospital stay extends on a bit. I miss them incredibly, but thankful for phone pictures of their days. The 6 of us need to be back together stat.
Isn’t it just like life to throw those curve balls…always. But Courtney reminded me again this morning…At the top of my lungs, Hallelujah! We would still sincerely appreciate your prayers for Amon. Thank you for all your kindness…it is really amazing and our family is very grateful and humbled by your love.
**Because I am already getting emails about the not eating thing…the hospital is not starving him…I promise He gets TPN…nutrition…through his picc line, so he will not be wasting away. It unfortunately does not make him feel full…that’s the kicker. I asked if they could sedate him…they laughed…so I, in turn, laughed too playing it off like I was just kidding…but I wasn’t Thanks for your concern.**