We just got home from an all day pre-op day at Vandy. An entire day…me, Josh, Amon and lots of Vanderbilt medical staff.
(His hair is glorious even super early in the morning.)
I feel like my mind ran a marathon…no, make that competed in an Ironman…yes, that is way more comparable. There were chest x-rays and sedated echos and ekgs and blood work and meetings with our surgeon and nurses and a hospital tour and checking, rechecking and checking again of his vitals. Turns out open heart surgery is kind of a big deal It was quite the pre-op day for sure.
And it turned out to be not a pre-op day. There is another child who needs emergency surgery and they are moving Amon’s surgery to next Thursday. Part of today was checking in on how his heart is doing and they think he will be fine to wait until next week. They did find something that leads them to believe Amon will need more surgeries after this one. This could be wrong and we are praying against it…big time.
The whole change on such short notice has honestly thrown me for a loop. We were mentally prepared and physically prepared. We had everything lined up as far as the big wee Kelleys go…who was going where and when and who was picking up who on what days and so on and so on. Josh had everything lined up for work and his days off submitted. I had all my stuff ready for the hospital. We were just ready. And even though it’s just a week wait, that seems like a very long time when anticipating open heart surgery for your child.
It will be another week of staying home and keeping germs away…fighting to keep Amon healthy enough for surgery. And another week of waking up at every little sound he makes in the night to check to make sure he’s breathing okay and that he’s not having a spell or rapid breathing. Things like that just add up and can cause a bit of stress.
BUT…and it’s a really, really important BUT…despite my griping…I am so grateful that Amon does not need emergency surgery. It’s frustrating, yes, but I’m thankful he is well enough to wait another week. I am praying for the child that will be in his operating room and their family.
I heard a line in a song last week and decided it was my war call…my mantra…for this journey we are about to take with Amon and his heart. “At the top of my lungs…Hallelujah.”
I want to consciously praise God…I mean really praise God…no matter what happens. The Good. The Bad. And even the Re-scheduled. I know this will not always be easy, but I’m going to give it my best earthly flesh try. Plus I told Courtney about my mantra and I know she is going to hold me accountable because that’s what Courtney is good at. I need the accountability. I need that help and reminder that God is good and the Creator of this world…the Creator of Amon and his heart. He deserves praise always.
So his surgery is now set for next Thursday and now I’m going to enjoy dinner with my little family and rest. I may even go to bed early…it was kind of a long day.
Happy Tuesday…the pre-op day that wasn’t.