Holding On

I blogged a grand total of once last week and honestly didn’t know if I’d get around to it today either.  When I’m just not sure what to say, it’s hard to make myself think through the words and then figure out what to type, so this will probably be short for today.

Everett did amazingly well during his heart cath on Wednesday.  Thank you so so much for all the prayers and kind & encouraging words and for all of you who have been checking in on him too.  You guys are insanely nice.  You really are.

The team was able to get all the information they needed.  His cath went great and they also did an additional echo while he was sedated.  While at the hospital he also had a thorough ultrasound done of all his internal organs as well.  Everett’s just got wild little insides that are wired quite complexly and differently than most.

We stayed the night and he did awesome.  He actually only cried once the entire time.  All the nurses loved him…of course.  He ate all the foods and drank all the drinks and walked around his hospital room like he owned the place.  He fell asleep in my bed and then I moved him to his.  He even slept the whole night even while nurses came in and out to check on him every 30 minutes  to an hour.  He is just a little dream boat.

Bright and early Thursday morning a big team of surgeons and cardiologists met and went over all of Everett’s information. We ended up speaking with our cardiologist and the cardiologist on Everett’s team who preformed his cath and after reviewing all the information they informed us the team decided Everett’s heart could not handle the surgeries he needs right now.  This is obviously not the news we had hoped for.  His heart function has diminished over time from working so hard and his special little heart and anatomy make the surgeries very complex.  Right now the plan is for Everett to begin some new medications this week in hopes of increasing his heart function.  After a few months they will reassess and present his case to the team again.  So now we’re praying like mad these medications will work and that Everett’s heart function will increase and become strong enough for his first surgery.

We’ve been trying to process everything.  Today I ate approximately 52 pieces of chocolate and burst into tears in the van in our driveway 🙂  We are not hopeless and we fully believe in a God who heals, redeems, renews and restores.  We’re asking Him everyday to heal Everett’s heart and absolutely believe He can.  We’re also just sad right now.  That’s the best way to describe it.  Just sad.

So tomorrow we’ll head to our cardiologist’s office for another appointment and she’ll start Shuai on some new medicine and we’ll just hold on.  And we’ll keep soaking his sweet little self up every single day and continue to petition God to heal his sweet little heart.  In the mean time we’re trying our best to focus our attention on the matters at hand…the places and people we can love.  An easy place to land is our friends the Carmans.  If you missed how our friends are adopting Everett’s best friend you can catch up HERE.

So two ways we can help the Carman’s with their fundraising goal:

1. You can make a 100% tax deductible donation on their AdoptTogether account HERE.  So easy and so helpful and tax deductible.


2.  You can come shop Noonday Collection’s new spring line at our house Thursday, April 27th from 6-8 pm.  I promise to have good food, good drinks, lots of laughter and I will absolutely hug you.  I promise.  Unless the hug creeps you out and in that case I will not hug you.  Tell every last person you know and let’s party together for the Carman family.  Bring a friend or two or ten.  Carpool or just park all over our yard and street.  Last time our neighbors came over to check to make sure no one had died.  Let’s make them think something is really really wrong this time.  🙂

If you cannot make the party in person, no worries!!!  You can shop online HERE and your goodies will be mailed directly to you.  When you check out just make sure Rebecca Daniels is your ambassador and Laura Kelley is your hostess.  20% of all purchases…in person, email or online…will go towards the Carman’s adoption fund.  And let’s not forget Mother’s Day is just around the corner people.  Your mother most definitely deserves some Noonday!

Added bonus:  Noonday has an extra incentive for guests who spend $75 or more – they can get the Afloat Earrings and Matovou Bracelet for half-off.  If you’re interested in this offer just contact Rebecca at noonday.rebecca at gmail dot com and she’ll hook you up with the special.

 Thank you again so much for praying with us over Everett and his best buddy.  Thank you for supporting the Carman family and for always cheering us on.  I keep reminding myself these boys and their amazing hearts we’re created by God.  He designed them just so and His work is good.  He created them both in His image…jacked up hearts and all 🙂


  1. Prayers for sweet E!

  2. Marianne cupples says:

    Prayers for sweet Everett and the Carmans!

  3. I’m so sorry it wasn’t the news you hoped for, but sending you strength that the coming months will help heal Everett even more so he has a successful surgery.

  4. Aunt Tootsie says:

    Praying for that precious little boy and your whole family.

  5. Aunt Tootsie says:

    Praying for that precious little one and your whole family. Wish I was close enough to get a hug.

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